Tuesday, October 30, 2012

Prayers for Cathy!

My sister's mother-in-law, Cathy Sedlak, had surgery to remove a tumor on her brain stem yesterday.  There was a complication and we are all praying that she will wake up with good function and for a smooth and successful recovery so that we can have our sweet Cathy back.

We all covet your prayers for her.
The only pic I have of Cathy.  She is the 4th one from the left.  Riding in the top drive at the Cuatro Esquinas Ranch!
From left:  Rachel and Kelly (Michael's sisters), my sister, Cathy, John Sedlak, and the Johnsons
Feel free to check out her youngest daughter, Rachel's, blog.  Rachel is my brother-in-law's sister so Rachel and I call ourselves "sisters-in law,-in law." :)

Thank you!

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Tuesday, October 23, 2012

The report from the doctor...

PERFECT!

Field's heart looks great (I believe Dr. P said his heart looked "beautiful" multiple times), pressures were better than ever, blood pressure normal, and O2 sats were good.

We go back to see Dr. P, our local cardiologist, in February 2013.  Then we'll head to Texas Children's Hospital in March 2013 for a one year check-up there along with a pre-fontan Cath.  That is when we will discuss plans for the Fontan surgery, which we are thinking will be in the Fall of 2013.  Many, many, many people ask me if Field will need to have that 3rd surgery, especially because he is doing so well and his heart check ups have been so great.  The answer to that question is unfortunately, yes.  He will most definitely need the last surgery (Fontan) at some point in his life.  It could be at any time, if his little body tells us he needs more oxygen and if his heart seems to take a turn for the worse.  But otherwise, we are in a waiting period.  God continues to bless us with HIS good news and normalcy.  We are grateful for HIS perfect timing, HIS perfect plan, and HIS love.


Amen and praise be to God!  
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Sunday, October 21, 2012

Prayers for our next check up...

On Tuesday we will venture over to the medical center to have our 4 month check-up with Dr. P, our cardiologist.  We covet your prayers for a healthy heart, no surprises, and a growing boy.

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Tuesday, October 16, 2012

Love God, Love your Husband, Love your Kids

Love this article encouraging moms to chill out and keep it simple:  Love God, your husband, and your kids.  :)
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Friday, October 5, 2012

Lately...

Thank you for the wonderful comments and support in regards to my last post.  I was nervous to put that out there, but glad that it has helped many of you.  I even had a friend grab me at a party I attended and said she used my tips right away to help a neighbor in need.  Thank you for sharing your story with me, Jessica!

So, on to other news.  We have been SO BUSY these last few months and our weekends have been filled with fun fun fun for Mister Field.  We love this age he is at!  (Well, other than the temper tantrums.)

We attended the circus with some friends and it was great!  Field loved the show ladies.  Ha!  He still imitates them and yells out, "Hi Ladies!"  He also enjoyed the pony ride, the tigers, and the motorcycle man on a tight rope.

Riding a pony at the circus!
Checking out the elephants
We also took a quick weekend trip to the beach in September.  We wanted to get our beach fix in one last time before Fall.  We had a wonderful time and as always, Field loved the sand and waves.  Sadly, my iPhone went into the ocean after a boat ride around the bay.  I was SO upset, but I am over it now.  :)

A very tired boy and his daddy and a beautiful sunset
The firemen visited Field's school and he LOVED them.

He spotted the trucks! 
Thank you, Mr. Fireman
A fireman and Field - 2 heroes in my mind!  
Thomas the Train!  Oh my!  We attended "A Day Out with Thomas" in Burnet, Texas where we got to ride a real, live Thomas the Train.  We also saw Sir Topham Hat and played with lots and lots of trains.  This was such a fun experience and I know we will go again when Field is older.

He spotted the train!
Playing with trains before Thomas arrived.
Our ticket!
Thomas!!
On the train
I have followed this blog of precious Mia since we found out about Field's heart.  Mia had a heart transplant at 4 months old and has been an incredibly encouraging story.  Her family left for a trip to Disney World through the Make a Wish Foundation and she ended up in the ER in Florida with what is believed to be rejection of her heart.  She is currently on ECMO which is a very serious situation.  Please, please, please pray for this sweet and beautiful girl.  I cannot lie, this has rocked me pretty hard. Kids with CHD's can be doing so well and then turn a corner for the worst in no time. It's truly SO discouraging and SO frightening as a heart parent.  All of my worries and fears aside, please lift up sweet Mia and pray for a complete healing of her body and mind.  Thank YOU!  Below is a precious video that Mia's family made for her heart donor's family.

Let me warn you that the tears will flow but I hope this gives you a better picture of precious Mia who needs our prayers.

For Jessica from Lilly McDowell on Vimeo.
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Friday, September 7, 2012

What NOT to say...

Through my biggest trials in my life (losing a close friend to cancer and Field's medical diagnosis/surgeries) I have experienced the MOST genuine love and support.  So let me start out by saying I am SO very blessed by those who continue to encourage us through our difficult times.

However, on that note, I also have experienced people who don't know what to say, don't know what to do, and/or say things that are hurtful or offensive (of course, not on purpose).

So, I have decided to devote a blog post to give some advice on what to say and more importantly, what NOT to say.  Please note that these are solely my personal opinion.  Also, I do not have any single person in mind who has said the wrong thing, so please do not worry if you feel you might have said these things before.  These are all general statements and comments about what I personally feel should or should not be said to someone during a tragedy.

Many people mention that they don't know what to say when someone faces a difficult trial and the awkwardness sometimes overshadows the thoughtfulness, so I thought I would give my thoughts to help anyone that has difficulty in this area.

#1 - My biggest pet peeve (one that all of my close friends already know).  Please do not say, "I cannot imagine what you must be going through."  This comment isolates the person, makes them feel alone, and also reminds them that their life is so bad right now that you cannot imagine being them.  When people tell me that they "can't imagine" what I am going through, I always want to tell them to try to imagine.  So that's my advice, instead of telling them you cannot imagine how they must be feeling, try to imagine and think about what would make you feel supported and less alone.  It's ok to not understand what the person is feeling, but don't tell them that.  A better comment is something like this, "We are here for you.  You are not alone in this.  We will support you through this."
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#2 - We always want to help someone who is going through a difficult time.  Especially a death in the family or someone who is very sick.  Most people will email/call/text and say something like, "Let me know what I can do to help" or "Let me know if you need anything."  Chances are the person in need is not going to call you up and ask for a favor.  So instead of asking them to let you know when they need something, be assertive and say something like this, "I am running by the grocery store later and am going to grab some snacks for you.  Can I drop them by the hospital/house/hospice home around 2:00?  I won't stay and can leave them on the front porch if that's easier."  If you want to bring dinner, don't ask if you can bring dinner.  Be assertive and say something like this, "I would like to bring you dinner this Tuesday or Thursday.  Which day works best?"  And please do not ask what they want for dinner.  Just make something that you would like.  It's awkward to tell someone to bring you dinner and even more awkward to tell them what to bring you.  And if all else fails, drop a basket of fruit and baked goods by with an encouraging note.  Surely someone will eat them and an encouraging note is always welcome.  I am putting emphasis on an encouraging note - write something that will make the person feel loved, supported, and encouraged.  And to reiterate what was said above, please do not put this in your note:  "I cannot imagine what you must be going through.  Love, ___."  
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#3 - Another helpful way to help a friend in need is to offer to mow the lawn, pick up prescriptions, or run errands.  When Field was born, we were so consumed with trying to feed a baby that wouldn't eat and prepare for surgery at 3 weeks old.  Our friends did SO much for us, but one of the sweetest things they did was come mow our lawn once a week so Brad didn't have to worry about it.  We would look outside and one of the guys was mowing away in our front yard and we never asked them to do this.  What a GIFT! (Thank you, sweet friends!)  Another sweet co-worker of Brad's showed up at the hospital on the day of his first surgery (Field was 3 weeks old and having his first heart surgery.  We were a total wreck!) with a dozen breakfast tacos and a Starbucks box of coffee.  We still have no idea how he found us in the hospital and how he knew what time we would be there.  He literally walked into the waiting room, handed us the goods, and walked right out.  That, my friends, was a huge blessing.  We didn't want to talk, didn't want to cry, didn't want to explain for the one millionth time what is "wrong" with Field's heart...but we sure could have used breakfast and coffee.  So that was a wonderful treat.
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#4 - This goes for those dealing with a child with a special need or medical problem.  Please don't say, "I don't know how you sent your baby through surgery," or "There is no way I could have gotten through or done that."  Please remember that as parents, we don't have a choice as to whether our children are born sick or healthy.  If it was you, you would do the same things and you would be just as strong.  It's what we do as parents.  We intervene and we fight HARD for them.  No need to tell us that and no need to tell us that you could never do what we did.  Because you could.  A better way to support someone in this way is something like this, "We are so proud of you for what you have done for your child.  What a lucky boy to have such supportive parents.  We are here to support you as you care for your child."

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#5 - Most importantly, the worst thing you can do is say or do nothing at all.  When we feel uncomfortable and don't know what to say/do, the easiest thing is to say/do nothing.  Please do not do this.  This will put a barrier in between your relationship that is hard to remove.  It's hard to talk with a friend that hasn't acknowledged what you are going through or what you have been through.  A gentle hug with an encouraging comment like, "I'm sorry to hear about..." or "You have been on my mind and in my prayers so much" or "My love and support is with you" or just a simple "We love ya" is great too.  As hard as it is, please acknowledge a tragedy or trial that a friend is going through.
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Once again, I certainly didn't write this to make anyone feel bad about a comment they might have made in the past, so please don't take it that way.  This truly has been on my mind for years (I have seriously considered writing a book about it!) and so I wanted to share my tidbits with all of you.  It might (or might not) be ironic that as a licensed counselor, I work now with children and families dealing with very difficult diagnosis.  My goal for each of my clients is that they feel more encouraged and more support after meeting with me - not deflated and alone.  I hope this helps you support your loved ones in these encouraging ways.
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Thursday, August 30, 2012

First Day of School

Field started school this week!  He has never been to school, so this was a very big deal for us.  We had "Meet the Teacher" the day before where I burst into tears to both the teacher and the director of the school as I shared a little about Field and what we have been through.  I wrote a letter about his medical history including the warning signs of a heart problem and also that he has no restrictions and should be able to participate in everything that all of the other children do.  (And if you know Field well, you know that won't be a problem.  He doesn't let his heart hold him back.)  Everyone was very sweet and encouraging.  I included a goodie bag of treats with the letters - it always helps to be on the school's good side.  ;-)


The first day of school was SO fun!  Field woke up saying "teacher!" and was all smiles all morning.


No more pics.  Let's do this, daddy. 
It's so fun to attend the same school as cousin, Ellie, too!

So excited about school!
So Ellie, tell me about this school thing!  
One of Field's best buddies, Harper, is in the class along with some other friends that we know.  It is a darling group of children and the school is perfect for us.

Field and his teacher
Field did not cry when we left him (he usually doesn't, but I was worried he would when he saw the other children crying) and he had a great first day!  The comments from the teachers were, "He is always so happy!  He has so much fun with everything we do.  He did not nap.  He sang, talked, and played peek-a-boo during naptime.  It was hard to get him to settle down.  He ate most of his lunch and his favorite center was dramatic play.  He also liked playing with the instruments."

Already taking good care of the baby in the classroom.  
Hahaha!  I am not surprised for many reasons, but it cracks me up that my high spirited, drama king enjoyed "dramatic play" the most.

The afternoon after school was brutal!  I did not want to put him down for a nap so late in the day, but he was a BEAR to deal with.  He had no patience and was on the verge of a meltdown all afternoon.  I am praying very hard that he learns to take a nap at school, otherwise, every school afternoon is going to be rough.  I know it takes time to adjust and we will get there.

It's been an emotional week for me.  My sweet baby boy goes to school now.  Such a big boy!  Time is passing so quickly and I just pray that we have a safe and healthy year.  I am also SO thankful, grateful, and blessed that Field gets to attend such a great school with such wonderful teachers and friends.  So all of that, brings up a lot of emotions.  But I do have to say, I had a wonderful morning off when he was in school and loved having some "me" time.  :)
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